Transcript
My name Thomas Kinnison, I am forty-eight years old.
Imagine reaching down and picking up a coin it’s very hard to do it’s the simple things that really affect your life that people take advantage of every day.
I was diagnosed with Rheumatoid Arthritis and Lupus when I was twenty-eight years old. Actually I knew I had something wrong with me prior to that a couple years. I thought I was getting old, I though you know this is what old feels like and I was only twenty-six at the time. Thinking that twenty-six was old at the time, actually when I went to the doctor twenty-six is not old. I see the doctor probably every two months approximately and that has been for the last twenty years and during that time you give blood every visit because of the medications you are on.
I have had approximately ten surgeries to fix replace my joints. My first surgery was my knee it is when I was actually diagnosed with what I have today. I was in surgery to fix a torn tendon in my knee and that is when they noticed something inside my joint was not correct. Since my knee I have had eight operations on my hands, joint replacements, knuckle replacements, and I have also have had a back surgery. When I was going to the doctor that was the first thing I asked can it affect your back. He advised me no its very rare Rheumatoid Arthritis gets in your spine; well I’m one of them very rare cases.
The hardest thing is dealing with what I have and the surgeries that I have had over the last twenty years I guess its been is I’m probably a poor patient, very poor because I don’t do the things that they recommend. Stay out of the sun with one thing because of the medications that I’m on but myself I can’t personally sit in my house and wait for my joints to seize up and sit in a wheelchair, that’s not who I am. So actually I go golfing is it a challenge, yeah its been a challenge there is things you know you have to relearn how to hit the club, swing a club and also after you are done golfing the consequences you are going to pay afterwards. But the consequences well over ways you know the affect it has on my body.
It’s very important that you think positive and don’t actually let it ruin your life, don’t let it take control of your life you take control of it. I think that it’s mainly a mental thing; pain yes there is a lot of pain-involved everyday. Does it bother me, some things do and some things don’t. The hardest thing when you can really feel it, your arthritis active mainly it’s your arthritis you feel active is during a weather change, a cold spell, a rainy spell. I can predict the weather better than a weather man can cause I can feel a front coming in and just through my joints in how sore they are going to be or they are starting to become. It has a lot of affect, the weather has a lot of affect change from summer going into fall this year it was a hard change it actually almost went straight into winter it seemed like and that’s the hardest thing on your joints is that quick change instead of a gradual change, it doesn’t let your body get use to the different temperatures.
The method I would pass on that anybody has Rheumatoid Arthritis or Lupus mainly is the Lupus can actually kill you if it attacks your major organs but the Rheumatoid Arthritis is to have a positive attitude don’t let it hinder what you want to do in life. If you let the disease, actually it is a disease affect you know the way it wants you to live your not going to live a happy life.